Data with Dignity: Designing Fair, Human-Centered AI
October 30, 2025The webinar Data with Dignity: Designing Fair, Human-Centered AI with Christine Von Raesfeld and Adam Kaufman explored why AI in healthcare must be built on foundations of trust, transparency, and patient dignity. The discussion examined how data is frequently collected and used without patients' full understanding or involvement, and why moving toward ethical, human-centered AI design is essential for more equitable outcomes. Christine shared insights grounded in lived patient experience, highlighting the risks of bias and exclusion embedded within healthcare data. She emphasized the need for more inclusive data practices, informed consent, and meaningful collaboration with patient communities. The conversation underscored that patients should be active partners in shaping the systems built from their data, not just passive data points within them.
